MARCH 2019

Welcome to our March 2019 edition of Headlines
your ACPIN newsletter

In this issue

News from ACPIN Public Affairs

  • Tourette’s Syndrome on BBC Radio 5
  • NICE upcoming consultations
  • NICE CG186 multiple sclerosis in adults: management
  • NICE CG161 Falls in older people: assessing risk and prevention
  • NICE meetings in public 

2019 UK Parkinson’s audit

South West ACPIN AGM 2019

Welsh Stroke conference 2019

News from ACPIN Public Affairs

ACPIN is registered as a stakeholder on these NICE Guidelines and quality statements. We have the opportunity to influence this, to make our voice heard, for the public good.

ACPIN Public Affairs aims to respond to guidelines and give members a voice. This is an opportunity for you to contribute to an ACPIN response on behalf of your patients, our profession, for the public good.

I outline below the Current updates, the consultation periods, hyperlinks to the relevant places on the NICE website. Most importantly I would need your submissions prior to the NICE deadlines, as indicated below.

Think hard, contribute powerfully.

BBC 5 Live

BBC Radio 5 Live Investigates logo

Dr Jonathan McCrea
Board Member for Public Affairs

Over the past year I have been working with Tourette’s Action on the development and implementation of a survey they carried out to identify the problems encountered by those suffering from Tourette Syndrome, particularly the physical and physiotherapy related issues.

On the 20th January 2019 I was on BBC 5 Live Sunday Breakfast and later the same morning on BBC 5 Live Investigates to address some of the issues raised about Tourette’s Syndrome with some of the leading national experts in the field to raise the profile of the Association of Chartered Physiotherapists in Neurology. You can listen to the BBC 5 Live Investigates programme here.

Are there other issues which programmes, such as BBC 5 Live Investigates, should be looking into? If there are, let me know.

NICE – upcoming consultations

National Institute for Health and Care Excellence logo

NICE quality standard on Cerebral palsy in adults

The topic engagement exercise for cerebral palsy in adults quality standard will run from Thursday 21 March 2019 to Thursday 4 April 2019.

When topic engagement begins NICE will publish an overview describing core elements of the quality standard, such as the population and condition or services to be covered, and list the key source guidance that will be used to underpin the quality statements.

NICE requests submissions to:

  • identify five key areas for quality improvement
  • highlight any national or routine indicators and performance measures not listed in the overview
  • provide examples of published information on current practice (such as, reports of variation in care or service provision, evaluations of compliance with source guidance, or patient, carer or service user experience) to support the identified areas for quality improvement
  • For further information on the quality standard or the quality standards programme in general please click here.

Contributions to ACPIN Public Affairs by 5pm Friday 29 March 2019.

CG186 Multiple sclerosis in adults: management

NICE propose to update this guideline and will focus on multiple sclerosis (MS) symptom management and rehabilitation. New evidence has been identified in a number of topics of interest to physiotherapists. Click here for more information.

CG161 Falls in older people: assessing risk and prevention

The above NICE guidelines is being checked by NICE to see whether it needs updating.

NICE – meetings in public:

Lyme Disease Quality standards advisory committee

1st – 4th April 2019

The public registration facility to observe this meeting is open and will close on Thursday 21 March 2019. Register here

As a public observer, you will be able to listen to the business of the meeting, except where confidential information is being discussed, however, you will not be able to:

  • participate in committee discussions
  • ask questions, take part in voting or put your views to members of the committee

For further information about meetings in public please refer to: Common questions and answers about standing advisory committee meetings in public.

For any queries regarding observing this meeting, contact Shannon Nettleton

2019 Parkinson’s Audit

Registration is open for the 2019 UK Parkinson’s Audit: the recognised quality improvement tool for Parkinson’s. Register before 31 March 2019 by clicking here.

The Audit is an opportunity to involve your service in a recognised continuous improvement cycle, and be part of a larger Parkinson’s community committed to service quality. With streamlined questions and a new, easy online data collection tool, taking part is easier than ever before.

“Taking part in the Audit gives a tremendous opportunity to develop your service and practice to ensure that people with Parkinson’s are getting the best evidence-based physiotherapy intervention. It also opens doors to great incentives such as service improvement grants and other support to help you develop your service further. There is plenty of time for collecting the data once the audit opens, and with the new online data collection tool, it really is easy to input your data! Sign up before 31 March!”
Fiona Lindop, Specialist Physiotherapist, University Hospitals of Derby & Burton NHS Foundation Trust and UK Parkinson’s Audit Physiotherapy lead

Getting started

To be eligible to take part, your physiotherapy service only needs to collect data from a minimum of ten patient cases. Information can be collected during Parkinson’s assessment, review or intervention from 1st May to the 30th September – the five-month data collection period.
The Audit is also open to elderly care and neurology consultants, Parkinson’s nurses, occupational therapists and speech and language therapists.

Support and service improvement

Parkinson’s UK can support you with the quick and easy Audit registration process. There may also be in-house support available to help you participate in the Audit, which is listed in the 2019-20 HQIP Quality Accounts.

Audit evidence can be used to build business cases and attract service improvement funding. All services receive an ‘Individual Service Report’ benchmarking their data against UK-wide results, along with dedicated support to develop and deliver service improvement plans, as part of the UK Parkinson’s Excellence Network offer.

UK Parkinson’s Excellence Network

The audit forms an integral part of the Excellence Network, the one-stop-shop for Parkinson’s education, collaboration, evidence and resources to drive forward service improvement.

For further details and a link to the on-line registration form click here, or email them. The deadline for registration is 31st March 2019.

South West ACPIN AGM

Clinician and Patient Perspectives

Date: 27th April 2019

Time: 9.00am to 1.00pm

Venue:The Vassall Centre Gill Avenue, Bristol BS16 2QQ

Cost: £10 ACPIN members, £20 non-members, £5 students

To include:

Complex Regional Pain Syndrome
by Professor Candy McCabe
Florence Nightingale Foundation Clinical Professor in Nursing

Constraint Induced Movement Therapy
by Jessamy Boydell
Occupational therapist MSc MROT

and Patient partners experiences

Coffee and tea included

For more info and to reserve a place please email Dr Praveen Kumar.

Limited spaces so book yours quickly!

If you have any research or clinical posters that you would like to share please let us know.

Welsh Stroke Conference logo

The 18th Welsh Stroke Conference will be held on Wednesday 3rd and Thursday 4th July 2019 at Cardiff Metropolitan University, Llandaff Campus

The Welsh Stroke Conference team are pleased to announce registration is now open.

We encourage healthcare professionals from all disciplines connected with stroke care in Wales and further afield in England, Scotland and abroad to attend. This includes the doctors, nurses and all allied health professionals of all grades to attend and benefit from the excellent programme developed this year.

The audience is always highly motivated to learn about recent advances in stroke research, new developments in service delivery and to see the excellent range of scientific posters exhibited.

Our conference aims to:

  • Provide robust evidence-based learning
  • Improve service delivery
  • Further attendees’ overall knowledge and understanding of current local and international research and practice in care and management of stroke patients
  • Improve attendees’ skills in the treatment and care of stroke survivors
  • Inspire attendees to achieve personal excellence in care of stroke survivors
  • Take away new developments and ideas to progress their workplace services to stroke survivors
  • Ultimately improve stroke survivors’ clinical outcomes

Click the below links for:

Please remember to book your place by the 3rd June in order to receive the EARLY BIRD rate.

Please note that online registration will close at 23:59 on 26th June.


Other key events in 2019

  • Northern Ireland Stroke Conference: 11th June, Belfast
  • UK Stroke Forum: 3rd – 5th December, Telford


Prof Jane Burridge (non-voting)

Honorary Chair
Jakko Brouwers

Vice Chair and Governance
Adine Adonis

Honorary Treasurer
Dr Joanna Kileff

Secretary and Executive Assistant
Catherine Williams (non-voting)

Membership Support
Corinna Robinson (non-voting)

Public Affairs
Dr Jonathan McCrea

Regional Affairs
Nicola Guck

Conferences and Sectoral Networks
Eleanor Butler

Membership Affairs
Lorraine Azam

Amanda Denton

Dr Ruth Turk

Professional Development and Practice
Richard Pawsey

Publications and Knowledge Dissemination
Dr Praveen Kumar

Member without portfolio
Karen Hull

ACPIN’s aims

1. To promote and facilitate collaborative interaction between ACPIN members across all fields of practice including clinical, research and education.

2. To promote evidence-informed practice and continuing professional development.

3. To provide encouragement and support for members to participate in good quality research (with a diversity of methodologies) and evaluation of practice at all levels.

4. To maintain and continue to develop a reciprocal communication process with the Chartered Society of Physiotherapy on all issues related to neurology.

5. To foster and encourage collaborative working between ACPIN, other professional groups, related organisations ie third sector, government departments and members of the public.